The International Niemann-Pick Disease Registry (INPDR) - A new model of patient-empowered data ownership and management
Imrie, Jackie, Pineda, Merce, Coll, Maria Jose, Hiwot, Tarek, Jones, Simon, Bembi, Bruno, Hrbicek, Martin, Mengel, Eugen, Crushell, Ellen, Patterson, Marc, Green, JimТом:
123
Мова:
english
Журнал:
Molecular Genetics and Metabolism
DOI:
10.1016/j.ymgme.2017.12.168
Date:
February, 2018
Файл:
PDF, 52 KB
english, 2018
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